Daughter with Spastic Diplegia
Hi Ted, I have read your remedy on earthclinic.com. My daughter is 10-1/2 years old and has spastic diplegia (CP) mostly affecting her legs. Someone posted an "easy to follow" plan after reading what you posted. Is this information correct for me to follow? What you wrote about the ammonia in the urine was very interesting as my daughter's urine smells very strong. Does she need a urine test to see where she is at, etc.? Can I do this or do I have to take her to the doctor's? I just really do not know where to start and would appreciate any help you can give. I know you are extremely, extremely busy, but I would so appreciate your help. The doctors keep recommending botox and/or surgery. We are against the botox and would like to try any nonsurgical ways that we can. She is so, so tight (even with stretching and physical therapy) and seems to be getting more so the older that she gets. Thanks in advance for your time and consideration.
Debbie, Reducing ammonia is important as they go to the blood and is a neurotoxin. So a child can have a toxic blood as part of the cause. Two thing will reduce this sodium acetate and hydrochloride found in betaine. Tight muscles is a spastic condition caused by neurotoxins that are excitoxins as in aspartate and excess intracelular calcium helped with magnesium chloride and sodium citrate. I won't use another neurotoxin as in botox to kill nerve cells. A better remedy maybe inhibitory amino acid such as glycine, GABA, threonine and taurine which protects spastic causing excitoxins. A bacterium producing spastic maybe helped with three times a day dose of lysine for a couple of days to see results.
Ted
Debbie: A correction to the previous email that mentions spastic condition (tightening of muscles to arms or legs) as being bacterium cause. In practice most spastic conditions are viral causes, as in rabies for example, some are much slower growing or live like parasites (as in Parkinson's disease or Alzheimer or ALS) which leads to lack of control as it attacks the motor neuron. Some are more excitatory, as in rabies, or a more generalized condition referred to as tropical spastic paraparesis which effects the central nervous system, particular the leg area. If they are viral cause, the treatment is relatively a simple one and the approach I used is similar to the ALS protocol using the the hourly dose of lysine and threonine in equal amounts hourly for at least four hours for only a week (usually), whereby with improvement in condition, the lysine and threonine is reduced to just once or twice a day, and perhaps less depending on white blood cells count (so they can't be too high). One relatively overlooked piece of information is to increase your white blood cells count is just to take the lysine and threonine, particularly the lysine. Whereby we reduce the dose once the virus are taken care off, which usually require a week. In my one week period, it is actually shorter, such as 5 days. The maintenance dose is continued perhaps for another week and then reduced to just once a day. Since children doses varies depending on their weight. the dose for a 7 year old is anywhere between 100-500 mg depending on their weight, with likely dose of 250 mg to be median dose taken hourly for only four doses. The threonine is similarly. The acidity of the hydrochlorides such as betaine Hydrochloride, taken with meals, 1/8 teaspoon during meals will neutralize the toxic ammonia gases. In a few cases bad smelling stool can lead to excessive hydrogen sulfide gases, at which case whether ammonia or hydrogen sulfide (sewer gas smell) comes from urine ammonia or hydrogen sulfide stool, the hydrochlorides (HCL, betaine, sodium acetate) will tend to neutralize that. In whichever cases we look at, bad smelling stool, ammonia smelling urine, or spastic viral bacteria we can easily see that the invading pathogens have taken ransom of the child's body through suppression of immune system, otherwise these pathogens can't be found in ammonia producing bacteria, hydrogen producing bacteria of the stool, or the excitatory virus causing spastic condition, in which case I view cerebral palsy as a global immunity issue as a likely remedy to fix the condition. Once the pathogens are out or reduced, then I may consider rebuilding of damage neurons. Obviously sugar, Splenda, Equal, aspartame, bananas, ice cream, and other sweet fruits will be counter productive in shutting down the immune system. So I guess besides dealing with ammonia, and obvious other toxins, it's maybe about killing these bugs also, in particular is the spastic virus, most dramatically seen in rabies.
Ted
08/04/2010
Ted, Thanks for all of your e-mails. I so appreciate them. Do you think I can do all of this on my own with my daughter or would it be better for her to be under the care of a homepathic doctor? If you get a chance to look at earthclinic.com, can you let me know if the poster who posted the "easy to follow plan" is correct in her summary of what you are talking about? My daughter is 10 and weighs around 58-60 lbs. Again, I thank you so, so much for taking the time to e-mail me and help me. I sooooooooooooo want to help my daughter and what I read and understood from you just makes so much sense.
Debbie
Debbie: The problem may not be the administration, it's trying to get the supplies. A homeopath may likely recommend a homeopathic medicine. A naturopath may recommend his. Usually the supplements I used need not be complicated. Acidifying the urine pH can be neutralized with ascorbic vitamin C, apple cider vinegar, sodium acetate, and hydrochloride as in Betaine. A simpler way is just vitamin C ascorbic acid, such as 100-250 mg three or four times a day. This will neutralize the extreme alkaline ammonia which are neural toxic. Once the urine smell is reduced the blood chemistry is corrected and ammonia is neutralized, we can then check for stool smell, which in a few cases becomes hydrogen sulfide, those are usually neutralized with the said vitamin C, but in some cases is corrected (if diarrhea) with charcoal or humic acid. The dose is modest for humic acid such as 1/16 teaspoon of humic acid powder, a charcoal for children may be just one or two tablets. As far a resolving the spastic, this may be more challenging, but magnesium chloride is my favorite, as it is also protective of heavy metal poisoning, is a calcium antagonist, also helps muscles relax, as oppose to excess calcium. As for viral cause a lysine is taken hourly dose for four doses, with same dose at the same time for threonine. Both doses are 500 mg each in general, and should be effective in killing most of the viruses within the third day, and on fourth day an extra dose is given as precautionary. Thereafter a maintenance dose to just once or twice a day for lysine and threonine maybe more then enough. The spastic condition should reduce, before the week is out, if the cause is viral in nature as lysine and threonine will effectively deal with viral issues. It should be noted that this is just the basic remedy I might use, but it always depend on certain symptoms from individual to individual. Some tweaking maybe needed. If there is improvement from this remedy then it's rebuilding of damaged neurons which may be as simple as taking hydergine 1-2 mg and piracetam 400 mg, for 5 days. In the long run the general approach is to monitor the toxic urine and stool issues as clues to blood chemistry and the issue of virus in the system. Nearly everyone who has cerebral palsy always have some sort of infection during term pregnancy so it is with my experience that these bugs may have gotten infected on the baby once given the birth, and hospital procedures and antiseptic are generally effective with bacteria, but hardly with virus, and once they get into a nervous system, viruses tend to stay there for a very long time, as in herpes simplex, HPV, and other viruses, such as adenoviruses in ALS and an unknown flu viruses in Parkinson's disease (a.k.a. Michael J. Fox, with the Parkinson's disease are viral in nature hence stem cells won't work because the viruses will infect the new cells!)
The interesting part is the lysine/threonine amino acid seems to be effective enough even with viruses hidden in the nervous system, hence is treatable.
Ted