Mother Just Diagnosed with Als
Hi Ted,
I was wondering if I could take my mom to go see you. She was just diagnosed with ALS today. She is a fan of earth clinic and is feeling very sad because the doctors have told her that she will most likely only have 5 years to live. I plan to visit Thailand next year...and since she was diagnosed today, I would like to take her with me to see you.
My uncle was a holistic doctor who moved to Chiang Mai. I don't have any contact with him otherwise I would have probably called him for help. Please let me know if you are open to this. I know it is a little unorthidox but I am hoping that you can help.
So far her symptoms are as follows. She started with tingling in her pinky finer (right hand) about 5 years ago. Then she had some sporadic neck pain. She was also diagnosed with being pre-diabetic and started watching her diet, exercising, and taking supplements like sugar drop (comprised of herbs which include bitter melon, cinnamon, etc).
When she came to visit me (March 2009), she tripped on a curb and fell. After doing this, we believe that she tore a muscle in her shoulder which caused her to have arm pain. She went to see a doctor, in Oregon, who told her to stop doing yoga because she might make it worse. Since stopping, her entire right arm became "frozen". The doctors then believed that she may have torn a muscle and so they did an MRI (around March 2010). In June 2010, she then had surgery to remove the scar tissue in her shoulder (from the fall) and proceeded with physical therapy. 3 weeks after surgery, she had blood tests done - her AIC was 5.9, cholesterol, myoglobin, etc.) everything was normal except her myoglobin which was in the 400 range. This alerted the doctors so they had her do an EMG test. In her second EMG test, it showed that she had problems with her nerve connectivity so she was told to see a Neurologist at the University of Oregon. Today, her physical therapy for her arm has ended. She still has little movement in her arm, but her writing is illegible. She is weak and often tired and she has good days and bad. Since her pre-diabetic diagnosis, she has been doing liver cleanses, master cleanses and gall bladder cleanses. But as of late, since the surgery, she has been doing an herbal liver cleanse supplement that is supposed to be more mild. She was thinking that the weakness was caused by an unhealthy / toxic liver.
Since I don't live nearby, I only know what she tells me on the phone. We talk everyday and I love her very much. From what I found out today, the doctor that conducted the EMG told her that she may have ALS. She was waiting to hear from the doctor at the University of Oregon for confirmation. I can get her accurate medical history
I am hoping that her ALS is a misdiagnosis... and that the problem is something else. I have family (Dad's side) in Thailand and can speak a little Thai.
Thank you and please let me know if you can help.
Dear C:
If the conditions are ALS, which I hope not, the outstanding feature is the gradual lost control of arms and limbs until inability to speak loud voices and lost of ability to breathe. The condition will accelerate more quickly near the final stage. Another disease similar but more general is motor neuron disease. Both are similar from my viewpoint as it is a virus usually an adenovirus. The most important thing is this is beginning to become an epidemic there are hundreds of cases a day in one typical Thailand hospital and I believe other countries also but is overlooked and I have noticed this pattern started since the beginning of this year and late last year. The hospital antiviral drug only works temporarily but will progress. Last time I found an epidemic in 2008 posted beginning of 2009 and called it virus 2009 which later turns out to be swine flu which authorities later called it virus 2009. However this virus I believe are far more dangerous because you loose control of your legs, arms which is debilitating sometimes permanent if not treated quickly. The best name for this if not yet declared as ALS is a more general Motor Neuron disease which becomes infectious about the same time as flu season. The one interesting feature is the infection do not spread from person to person but it does come from environment and becomes epidemic but very quietly from loss of limb control once it takes hold. So anytime you are free you can come and see me.
Ted
09/19/2010
Hi Ted,
I read your e-mail to my mom. She said she actually received a flu shot in January 2008 - which was right before her symptoms started happening. Maybe this has something to do with it. I hate drugs and asked her why she got a flu shot - since these can sometimes make people more sick. She said that since she was pre-diabetic, her doctor urged her to get it.
Also, since doing a bit of research, we are also going to check if she has Lyme Disease with another doctor (possibly in Nevada) and have her do another MRI. In a previous MRI she had a few bone spurs in her neck and a pinched nerve in C6 and C7. I know that it is hard to find, but I am hoping there is a holistic doctor here in the states - my uncle left the US because of the restrictions to practice.
For now, what can I do to help my mom? Or what can she do?
The info below is more accurate since she was one the phone with me when I typed this up.
She wanted me to let you know that she is taking the following per day:
1 Multivitamin
3 B12
1 Vitamin D
1 Tbs Lecithin
1 Tbs Beef Gelatin for her joints
80 mg Bilberry
40 mg Lutin
1 Magnesium
I tsp (3X per day) of Vitamin C - Buffered (no acid)
1/4 Tsp Potassium Citrate for leg cramps
1 capsule of Turmeric (2X per day)
Also, I wanted to let you know that she felt better after taking Turmeric (as an anti-inflammatory). She is also alternating every week, taking Bupleurum as a gentler liver cleanse to help with because she has been weaker and Liu Wei Di Huang Wan for helping to strengthen her kidney.
Ingredients in Liu Wei Di Huang Wan (I got this from the website):
A proprietary blend* of
Radix Rehmanniae Preparata
Fructus Corni Officinalis
Cortex Moutan Radicis (Paeonia Suffruticosa)
Rhizoma Dioscoreae Oppositae
Sclerotium Poriae Cocos
Rhizoma Alismatis Orientalis
(Shu Di Huang)
(Shan Zhu Yu)
(Mu Dan Pi)
(Shan Yao)
(Fu Ling)
(Ze Xie)
She has also been losing weight since her surgery. She weighed 128 before her shoulder surgery.
Post surgery, approximately 3 weeks after, her weight went down to 122, and she had blood work done. The blood work showed that her myoglobin was high at 107 (normal is 25-58), CPK was high at 427 (normal should be 0 - 142), SGPT (ALT) was high at 34 (normal is 0 - 31), and her CREAT was low at 0.4 (where normal is between .5 - 1.0).
In the past couple of days, she completed physical therapy. Since, she has started gaining weight again. It has now been 2 months since her surgery.
Thanks (mak mak) in advance!
Dear C:
I have long suspected the Motor Neuron disease to come right before the flu seasons starts which happens to occur right about the same time there is flu shots drive. Also it is a well known fact that there are many other viruses in a flu shot. Please check youtube using the word "jane burgermeister" and another ”SV 40 Merck" so you can see where things are going at the moment. While this virus is not infectious it is epidemic and the only logical explanation at least for me is it comes from flu shot for one. There is two more supplements your mom may benefit is the lysine 1000 mg and glutamine 3000 mg to slow the spread of this condition that is missing. She may also benefit from natural thyroid supplements and 1 drop a day Lugol's solution.
Ted
09/21/2010
Hi Pe Ted,
My stepfather was doing more research on my mom's medical history and found that my mom had Bells Palsy in beginning of September 2008. Per her medical doctor, she took steroids for 5 days. It increased sugar levels and once she completed taking the steroids, she was advised by her herbalist to take an anti-viral herb and something else that she can't remember. Her Bells Palsy was cured within 2 weeks.
Given this new information, we are thinking that she might have Lyme Disease. My mom also lives in Oregon... which is a place where there are also a lot of ticks.
What can she do if she has Lyme Disease? We are going to seek tests to confirm, but we thought we would ask.
Thanks!
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