Spasmodic Torticollis (cervical Dystonia)
Hello Ted,
In 1991 I was diagnosed with Spasmodic Torticollis (Cervical Dystonia), and most recently Anterocollis just last year. I have been an avid reader of Earthclinic for many years and have successfully found many home remedies for various conditions. I, as many appreciate you sharing your plethora of health knowledge and cures.
Fortunately, I am able to still work full time but suffer from embarrassment with the continual involuntary muscle spasms (except w/sleeping) to my sternocleidomastoid constantly pulling my head to my right. As you can imagine this is very unsettling. Since there is nothing on Earthclinic about Anterocollis or CD I am unsure of which protocol would be most beneficial to me. I have read your recommendations of Meth Blue for Parkinson's and wonder if this would best serve me, or would something for a magnesium deficiency be more appropriate.
I currently drink a cup of water w/2TBLS of Braggs ACV and 2 TBLS of raw honey on an empty stomach and consume 3 TBLS of coconut oil a day.
As treatment every 3 months I receive botox injections into the left of T3, 4 & 5 on my back and also to various neck muscles and do get some relief. I prefer the natural route if I just knew where to start.
I appreciate any advice or input you can offer, your time is much appreciated Ted.
Thank you.
Spasmodic Torticollis (Cervical Dystonia) could likely be Herpes Simplex Virus and are often treated effectively with Valtrex, an antiviral remedy in a matter of 4 days. However, they may be treated with lysine just the same, you may need some glutamine, as lysine may cause cravings for sugar and also glutamine gives energy for the immune system. The dosage may be this:
Lysine is given at 1/2 teaspoon or about 1500 - 2000 mg hourly for four doses in the morning. Glutamine is given at 250 mg, hourly for four doses in the morning and possibly 3 more doses in the evening.
This is continued for 5-7 days to show improvement. If there is sudden urge for sugar or anything sweet just add more glutamine up to 1000 or 1500 mg.
As for magnesium it helps some of this, so you can take them, as for methylene blue 0.1% that also raises the immune system and is taken at 4 drops in the morning and 4 drops in the afternoon. Magnesium chloride or saturated magnesium is taken at 10 drops it the morning twice a day preferably before meals, also helps. But your concentration area will be the lysine. Other things that helps includes Lugol's iodine half strength at one drop before sleep helps kill it too, but if there is any nausea, you concentrate on iodine painting of the feet you can do it briefly for a week to a month.
After your improvement, on taking the lysine after 5-7 days you may take lysine 1000 mg to 1500 mg twice or three times a day if necessary.
Ted"
Anonymous responds "Hi Ted,
I have been following the protocol that you so kindly laid out for me regarding the 2000mg Lysine, hourly four times in the morning and 250mg Glutamine four doses in the morning, and 3 more doses of Glutamine in the evening.
Today is my 14th day but the spasms continue. My neck muscles don't seem quite as tight but that is the only change so far. As you suggested I am taking 10 drops of the magnesium chloride twice a day on an empty stomach as well as the 4 drops of the methylene blue 0.1% in the morning and 4 drops in the afternoon in 1000mg of Vit C. I have also added half strength Lugol's @ 1 drop at bedtime.
Would it be helpful for me to continue with this protocol or should I make some changes? I'll do whatever it takes to get some relief.
Thank you for your time and attention. My best to you, thank you for your work."
Ted responds to anonymous "The herpes cause is easier to treat, but since you don't respond to that, it is probably mycoplasma pneumoniae that exists in your neural system. I would therefore try a simpler form of antibiotics the macrolides that responds to that which is erythromycin, clarithromycin or azithromycin, in particular clarithromycin and azithromycin for 3 weeks at least. As far as safer alternatives I might try Lugol's Iodine at 5 drops dose a night to see how it respond then I figure to dose based on it, they usually respond to mycoplasma in general, but I don't know for the mycoplasma pneumoniae.
Ted"
Anonymous replies "Thank you Ted. I just want to clarify that I should try the Lugol's 5 drops a night first then possibily go and get a prescription for clarithromycin or azithromycin? What kind of dosage would I need?
I would have to find a doctor that would undersand why I think I need these. Would any blood work support the dx mycoplasma pneumoniae?"
Ted responds "Check for antibodies against mycoplasma pneumoniae or similar mycoplasmas. You can increase to 5 drops x 6 if you are responding to that, but be careful of nausea. You can mixing in carrot juice if you want.
Ted"
Anonymous replies "Hi Ted,
I just wanted to share with you the results of my blood tests for the mycoplasma pneumoniae Ab IgG, EIA antibody. I just got them back today and the result is 288
It also indicates that it does not differentiate between an active or past infection.
The ranges are
< 0.90 for negative
.91-1.09 for equivocal
> 1.10 for positive
Prior to me writing you about the cervical dystonia I had some extensive blood work done because I was experiencing chronic fatigue for the past 6 months. Without going into a lot of detail the lab results indicated anemia but not due to low iron levels, actually those were within normal range. My doctor referred me to a hemotologist and that appt is coming up next Thursday so it is quite likely that he will be able to treat me for the mycoplasma pneumoniae. At least now I will be able to take along the results of my latest bloodwork.
I feel that an end to the cervical dystonia is more than a possibility now and want to thank you for heading me in the right direction. I am curious to find out if "muscle spasms" could be a result of the mycoplasma in the neural system.
I have experienced some naseau from 4 drops of Lugol's in carrot juice so have stopped that for now. I will keep you posted on my progress in riding myself of this hideous disease I have experienced for the past 20+ years.
I appreciate your contributions to Earth Clinic and the field of health in general. I specifically appreciate your help in shedding some light into my own situation."
Ted responds: "If you got side effects from Lugol's solution try iodine painting of the feet. There are several kinds of remedies you could eliminate that cinnamon oil 1-3 drops in one liter of water and shake vigorously it will dissolve. Humic and fulvic acid taken in small amounts will slowly eliminate it. There are others, but since you are heading in right direction, cure is a possibility and definitely a decrease of your symptoms is a certainty.
Ted"
Anonymous replies: "Regarding your response and for clarification what condition would the cinnamon oil and Humic and fulvic acid (small doses = what amount?) eliminate? Are these to eliminate spasms or mycoplasma pne?"
Ted responds: "At about between 1/10 it will taken one a day or twice before meals fulvic and 1/10 humic acid. It reduces mycoplasma other harmful buildup in the intestines.
Ted"
Anonymouys replies: "Hello Ted,
I saw the doctor today and he felt that the 288 for the Mycoplasma Pnenemonia Antibody test was from a prior exposure and that no action is necessary now. I felt that this was my only hope for getting a cure of my neck spasms and now feel pretty depressed.
I have been doing the feet painting at night and ordered some Fulvic Acid. Do you think 3 times a week is enough for the feet paining? Without the antibiotics I feel it is like a shot in the dark, and that my efforts with the alternatives may be without attaining the desired affect of ceasing the spasms.
Finding homeopathy help would be too costly for me at this point unless I could do it myself. I will look for some cinnamon oil at the health food store too and add that to my routine.
If you are aware of any online pharmacies that dispense clarithromycin or azithromycin in the quantities I need, I would appreciate the information."
Ted responds: "It is actually not possible to check for mycoplasma antibody for the form we are checking but it shows you have some, it could be mycoplasma avium for example, so the numbers will show lower numbers. You can get humic acid from plant nursery and fulvic acid. It has to be taken internally to have any effect, but in small amounts such as 1/10 to 1/8 teaspoon once or twice a day, dissolved in 500 cc of water as your drinking water. It will kill it slowly. The other is cinnamon oil, in drops of water such as 2 drops in a cup of water. Keep doing it. This usually will have some improvement them if taken long enough such as 1 month. There is no medical conventions to actually kill mycoplasma by any antibiotics, but there is some hope in humic acid and fulvic acid as it is one of the few bacteria in general including mycobacterium cannot exist. It is currently a health threat because there is no way to control it by chemical means except coagulation which is not an option if you are trying to kill in your body systems. There are four things I know that works, aloe vera oil, cinnamon oil and humic acid and fulvic acid, but to a certain extent. You can mixed aloe vera oil with cinnamon oil, humic acid and fulvic acid and take them internally. The aloe vera is oil soluble and mycobacterium is oil soluble, so it makes humic acid easier to reach. To keep penetrating powers to go into the mycobacteria for instance we add DMSO.
So I would imagine this:
50/50 Aloe/ DMSO mixture then add humic acid 10% and fulvic acid 10%. The total amount taken say 1 teaspoon.
I probably take that twice to three times a day.
Another broad spectrum antifungal is asafoetidea (devil's dung), if you can find them in Indian shops (small grocery for Indian) they will usually have it, but not pure as the mix with wheat, but it's better then nothing. I probably just add this and take them twice or three times a day.
That's how I deal with a fungal issue internally, it takes time. I know. There is a medicine that can kill this somewhat, it is doxycycline one tablet before sleep but while most wiki claims it doesn't have side effect it does, but it may be awhile for some people, such as 10 days before nausea hits and then you just discountinue. That's just my theories of course.
Ted"
Anonymous replies: "I wasn't able to find the items you mentioned in your protocol of a couple of days ago:
50/50 Aloe/ DMSO mixture then add humic acid 10% and fulvic acid 10%. The total amount taken say 1 teaspoon. I probably take that twice to three times a day.
Fortunately I was able to find them online. To help me in ordering them could you give me an approximation of the length of time that I may have to continue the protocol, if that is possible?"
Ted responds: "Try 3 months supply first.
Ted"
Anonymous replies: "Hi Ted,
I've received the Pure Aloe Vera Oil, cinnamon oil, DMSO, Humic Acid - 12% and Fulvic Acid - 10%, DMSO. I've also ordered the asafoetidea.
I think I understand that the Aloe and DMSO should both be of the same ratio to one another but don't know what measurement that would be. Could you explain it?
Also with the given % of the Humic and Fulvic acid I got should I still use an 1/8 tsp of each. And should I add all of the above to two cups of water or just take it straight? If you could clear these details up for my I would appreciate it as I am anxious to get started.and on my way to health.
50/50 Aloe/ DMSO mixture then add humic acid 10% and fulvic acid 10%. The total amount taken say 1 teaspoon. .
I probably take that twice to three times a day.
Can I mix the suggested 50/50 Aloe/ DMSO mixture then add humic acid 10% and fulvic acid 10% up in bulk to make it more ready available to use? Are you aware of any online conversion tools to help with this process?"
Ted replies: "Yes.
08/13/2011
Hi Ted, I wanted to give you an update since it's been awhile since I've been in touch.
I followed your directions for the aloe/DMSO/humic/fulvic acid combination but found the aloe and DMSO too costly to continue. But I did find a fulvic/humic combination supplement online and have began taking 1oz of that four times a day. I am also taking the Natural Cellular Defense from that company too. I am taking 5 drops 3 times a day.
While I still have yet to gain relief from the spasms I have noticed that my hair has gone back to it's original color - brunette with golden and auburn highlights - and that my skin and nails have improved greatly. I am also drinking a kefir shake every morning for breakfast with frozen fruit, maca powder, all natural protein powder, liquid chlorophyll and MSM, flaxseed oil and MSM (Methylsulfonylmethane). I am also alkalizing with sodium and potassium carbonate twice daily. It has only been a month but I am convinced that in time I will get some relief. I am now making my own coconut milk kefir and will begin making coconut water kefir too just for the added benefits.
I know that my health is improving everyday and I will touch base with you again in about a month. Thank you for getting me started on this regime."
08/13/2011: Ted from Bangkok, Thailand replies: "The spasms can occur if you have a lack of magnesium, circulation problems (relief is bromelain), and some spasms are indirectly from taurine, GABA, vitamin E, and B6 deficiencies. Remember, I don't have the advantages other healers have in mineral analysis, other devices and other things to help, so I basically give you the list that works. Your improvement is hair basically comes from MSM, protein supplements, but more improvement is possible with NAC, certain Bs, fulvic acid, and humic acid which may reduce some spasms too.
Spasms can be initiated partly by heavy metals. Low essential fatty acids, the ones I prefer are hemp oil which has the EFA in proper portions, but also some fish oils and cod liver oil, lecithin, these will reduce the effects of spasms due to heavy metals, and lysine (spasms from viral cause). NAC (N acetyl cysteine) is a mercury chelator and selenium, but cadmium is another one, if you had that, your blood pressure is high. In event of mercury, you get diseases of all kinds and it all happens at once. That's how you know. If cadmium we get zinc acetate to displace it.
Ted