Non-hfe-related Hereditary Hemochromatosis
Hi "Ted" : I am writing to you on behalf of my friend. She is 51, Afro-American female who has been diagnosed with non-HH [Non-HFE-related Hereditary Hemochromatosis] and she is getting worse despite the few phlebotomies she has been able to have. Her HgB is very low - sometimes at 5 after phlebotomy and averages around 9. Her ferritin levels have been 1500 - 2000 but are currently at 1200 and the Cancer Institute will not give her phlebotomies with ferritin levels this high and HgB levels so low. She is not a drug abuser or drinker and does have chronic anemia and was given iron supplements as both a child and as an adult.
Is there any possibility that she could be treated with something to slow down iron absorption until she can reduce ferritin levels? Are there foods or drinks or supplements that could raise HgB levels?
She is currently eating a lot of yogurt and fruits but very little meat.