Bourneville's Disease Treatment - Ted's Q&A

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Posted by Anonymous (Anonymous) on 08/18/2011

Hi there, while fighting candida albicans myself and enjoying earth clinics wonderful site, I was wondering if there is anything that can be done to help my work colleague's 8 yr old daughter. She has very severe tubular sclerosis and is handicapped also she has just come thru an eight hour operation to remove a tumour (one of many) the size of a golf ball from her brain. After initial success she seems to have gone backwards and the severe fitting and seizures have returned along with the not sleeping and screaming. Is there anything that can be done to reduce the symptoms remembering that she is only 8 yrs old and cannot talk. Any clear concise help would be greatly appreciated as the parents (close friend) are at there wits end. thank you.

Replied by Ted
Bangkok, Thailand
391 posts

The Borneville's disease is helped mostly I think with Ubiquinol CoQ10, not ubiquinone at this stage. Roughly for a 50 pound person I calculated to be 400 to 600 mg, and Quercetin 1000 mg. The doctors are likely to use rapamycin, but this is immunosuppressive. I prefer natural supplements that have anti proliferative nature, such as resveratrol 500 mg (which is rather large), chopped garlic, cats claw extract, mimosine, lycopene, citrus pectin, vitamin C, CLA (Conjugated Linoleic acid), vitamin E tocotrienols are the most well known. If it requires more radical supplement and get some energy to get out of coma for instance, it would have to be clove oil, methylene blue 0.1% drops, and Alpha Lipoic Acid with Acetyl L Carnitine are what I would look for. Since I don't have any cases here in Thailand I cannot tell you more details. But these are short term treatments for people who is unconscious and had tumor removed, so I could not recommend other supplements at the moment.