Infection or Pathogen Causing Autoimmune?
Ted! Hi I feel like I know you... I've been following and reading your posts on EarthClinic.com for almost 2 years. You have generously helped so many people and I am writing for your advice. I'm a 43 yr old caucasian female from NJ. I've been diagnosed with Lupus, Fibromyalgia, Osteoarthritis and Anti Cardiolipid Syndrome. I was first diagnosed with Lupus in 2009 due primarily to abnormal ANA fatigue and joint pain etc. I have never tested positive for lymes but was treated for it in 1988 and 1995 because I had what seemed to be bull eye rash. In 2002 I was very sick after the birth of my daughter and was borderline for lupus. I had awful sore throats every few weeks for a year where I could barely swallow my own saliva and huge, swollen knees that I could barely bend. I was also hospitalized with Mono when I was 15 years old and have always gotten terrible sore throats and cold that take forever to heal. Through the years I worked out when I felt good. I owned a retail medical supply store for 16 years and I consider myself to be very fun and bubbly, in good shape and pretty athletic and energetic. I believe my work outs have helped keep my symptoms at bay for many years. But now I don't even know myself. I know I can get back ifI can just kill this germ!
I had a small flare in 2009 and nothing again till Oct 2011. I began having terrible shoulder pain deep in the joint and bone. Shortly after that began I started having debilitating fatigue, knots in my upper back and constant pain and was miserable. I received many injections and it helped the pain a little. Than in January I began limping with terrible hip pain felt similar to the shoulder pain. I always felt like it was an infection or possibly septic arthritis. It was a bone crushing pain that also felt like shin splints. I had an MRI and it showed Bone MArrow Edema and some fluid in the hip space. But orthopedic doctors can't diagnosis it. They say it's an inflammation or part of my auto immune issues And can only offer me more pain pills and injections. I still have been limping and can't walk any distance. I'm so frustrated because I am so anxious to get back to my work outs becasue I know they helped keep these symptoms away but just can't get to a point where the pain and fatigue is tolerable. The only thing that has ever given me any relief from the pain was Minocyline and Biaxin. Within a 12 hours of taking it I had NO hip pain or limping It was miraculous. But It started up again after a brief period of relief. Maybe it wasn't the right dose or treatment but it did kill off something. It seems to be to be an infection that is starting to spread... now into other joints. I was also on LDN for 3 months and it did help the fatigue but not the hip pain. I am on day 3 of the borax, baking soda and acv. I have had brief periods of energy. Today I feel very exhausted and I am hoping it is part of the recovery. This THING has had a hold of me for over a year. I haven't been myself. I can't go out and do the things I normally do. I feel like I'm 100 years old. Now the brain fog is really getting to me. I can't focus on anything or remember things. This is no way to live. I have read allot of your recommendations for people and hope that you may have advice or a protocol for me to follow. Thank you for listening.
PS.. I have a twin sister who is now having symptoms just like mine!!! It's very strange!!!