Infection or Pathogen Causing Autoimmune?
Ted! Hi I feel like I know you... I've been following and reading your posts on EarthClinic.com for almost 2 years. You have generously helped so many people and I am writing for your advice. I'm a 43 yr old caucasian female from NJ. I've been diagnosed with Lupus, Fibromyalgia, Osteoarthritis and Anti Cardiolipid Syndrome. I was first diagnosed with Lupus in 2009 due primarily to abnormal ANA fatigue and joint pain etc. I have never tested positive for lymes but was treated for it in 1988 and 1995 because I had what seemed to be bull eye rash. In 2002 I was very sick after the birth of my daughter and was borderline for lupus. I had awful sore throats every few weeks for a year where I could barely swallow my own saliva and huge, swollen knees that I could barely bend. I was also hospitalized with Mono when I was 15 years old and have always gotten terrible sore throats and cold that take forever to heal. Through the years I worked out when I felt good. I owned a retail medical supply store for 16 years and I consider myself to be very fun and bubbly, in good shape and pretty athletic and energetic. I believe my work outs have helped keep my symptoms at bay for many years. But now I don't even know myself. I know I can get back ifI can just kill this germ!
I had a small flare in 2009 and nothing again till Oct 2011. I began having terrible shoulder pain deep in the joint and bone. Shortly after that began I started having debilitating fatigue, knots in my upper back and constant pain and was miserable. I received many injections and it helped the pain a little. Than in January I began limping with terrible hip pain felt similar to the shoulder pain. I always felt like it was an infection or possibly septic arthritis. It was a bone crushing pain that also felt like shin splints. I had an MRI and it showed Bone MArrow Edema and some fluid in the hip space. But orthopedic doctors can't diagnosis it. They say it's an inflammation or part of my auto immune issues And can only offer me more pain pills and injections. I still have been limping and can't walk any distance. I'm so frustrated because I am so anxious to get back to my work outs becasue I know they helped keep these symptoms away but just can't get to a point where the pain and fatigue is tolerable. The only thing that has ever given me any relief from the pain was Minocyline and Biaxin. Within a 12 hours of taking it I had NO hip pain or limping It was miraculous. But It started up again after a brief period of relief. Maybe it wasn't the right dose or treatment but it did kill off something. It seems to be to be an infection that is starting to spread... now into other joints. I was also on LDN for 3 months and it did help the fatigue but not the hip pain. I am on day 3 of the borax, baking soda and acv. I have had brief periods of energy. Today I feel very exhausted and I am hoping it is part of the recovery. This THING has had a hold of me for over a year. I haven't been myself. I can't go out and do the things I normally do. I feel like I'm 100 years old. Now the brain fog is really getting to me. I can't focus on anything or remember things. This is no way to live. I have read allot of your recommendations for people and hope that you may have advice or a protocol for me to follow. Thank you for listening.
PS.. I have a twin sister who is now having symptoms just like mine!!! It's very strange!!!
First off it seems all the symptoms are related to lupus caused by a rare form of tuberculosis, the cause of which is a known mycobacterium, and yes borax was the basic treatment for this condition, as are tannic acid 1/4 teaspoon per liter of water, to be used as drinking water. The cure for lupus and Morgellon's are generally the same, they are both responsive to borax, baking soda, tannic acid, sodium molybdate, and the latest one I am experimenting with is sodium thiosulfate. I have also experimented with using sound therapy to get rid of lupus, energy etc. in a few minutes, but that's not important for now.
The most important natural remedies are tannic acid, lysine, methylene blue 0.1%, N acetyl cysteine, sodium molybdate, zinc acetate, and sodium thiosulfate for now. For the fibromyalgia, it may be relieved mostly if you do lysine and N acetyl cysteine preferably in the afternoon to before you sleep, lysine 1/4 teaspoon and N acetyl cysteine 1/4 teaspoon every hour for four hours at least, for three days, you can do more, but to have an effect it requires that for sure. And if energy is low during the day methylene blue 0.1% 4 drops in morning, 4 drops in afternoon, and maybe some in the late afternoon, if there is still fatigue. Based on my computer scans (I finally have one), I found that fibromyalgia to be low in both zinc and sometimes copper, and the most deficient amino acid is lysine, followed closely by tryptophan, but apparently the body simply doesn't absorb tryptophan, so I just do some workaround such as B3 niacinamide 500 mg at night, which may help energy levels. As for zinc acetate, just 1/16 teaspoon or 15 tiny crystals will do. These will help the fibromyalgia.
As far as lupus is concerned the ones that have the greatest impact are borax, hydrogen peroxide, sodium molybdate, tannic acid, and sodium thiosulfate. Hydrogen peroxide 3% is mixed at one capful in 1 to 1.5 liter of water with 1/8 teaspoon of borax throughout the day. Sodium thiosulfate maybe be taken in early evening after driving and may produce a lot of yawning, but this does clear the mycobacterium from the body and should not produce thereafter. Tannic acid may be added to the 1 to 1.5 liter of water to further help at 1/4 teaspoon of tannic acid together with hydrogen peroxide and borax. As for sodium molybdate, maybe 1/8 teaspoon a day is fine.
In both fibromyalgia and lupus, N acetyl cysteine is the precursor of the body's glutathione and will help the energy for both conditions, especially selenium yeast at approximately 200 mcg between 1 to 3 times a day. Methylene blue works against the two conditions also by starving the mycobacterium but helps healthy cells, but cannot be taken at night as it produces sleeplessness, but another one B3 niacinamide will help sleep, which averages 500 mg at night.
As to your hip pain, that is caused by several anaerobic bacteria, such as cornyebacterium which is in the same family as the diphtheria and acne. So this will be helped with lysine and zinc, at about twice the larger dose for treating fibromyalgia and chronic fatigue.
As usual, you will avoid blood sugar raising foods, since these simpler organisms rely on simple sugars, especially the fructose and aspartame. It also helps to avoid salty products, mostly from chlorides, so avoid sodium as well as magnesium chloride when we deal with any mycobacterium.
Osteoarthritis' cause is a mycobacterium mostly but it also indicates acid blood which leads to osteoporosis. So getting rid of that mycobacterium as well as baking soda is simplest, but it helps if you add potassium, in the form of potassium citrate before you sleep at 1/8 teaspoon once a day at least. In some cases a loud burp may be experienced in some people to kill these fermentative organisms and this should go away within 8 days of continual use of say, sodium bicarbonate 1/4 teaspoon taken at night, and should be continued to help both the pain and the osteoarthritis. But osteoarthritis may be helped not only with sodium thiosulfate but also MSM 1/3 teaspoon x 3 times per day at least.
If you can't swallow your own saliva prepare a mouthwash, such as 1/2 teaspoon of sodium thiosulfate, with 1 tablespoon of water, and you can try others such as potassium bicarbonate 1/2 teaspoon, as well, and eat some aloe vera to help healing. The third one if the first two don't work is tannic acid 1/8 teaspoon in 1 tablespoon of water. Keep your saliva at least 7 to 7.4 pH.
As far as the heart is concerned, try B50 B complex, that will help some energy as well as selenium, and N Acetyl Cystiene and B2 riboflavin, 50 mg.